Friday 14 August 2020 Yesterday I didn’t take my morning shower, and after much procrastinating I took myself off to the supermarket to get essential supplies for the next few days. I did not change out of my house clothes or put on my lipstick. It was a phenomenal effort to venture out and I … More Mid-life moments in Alert Level 3 – Lockdown #2
On Tuesday as New Zealand moved to Alert Level 1, I dropped Mitchell off at school for the first time since lockdown began in March. He has been home for 12 weeks – without school and without anytime at Wilson Centre for respite. Plus, as you have been reading we have been very short of … More Reflecting on lockdown with a high and complex needs child
Omphalocele/ˈɒmfələʊˌsiːl/ noun MEDICINE a hernia in which abdominal organs protrude into a baby’s umbilical cord. Today is Omphalocele Awareness Day. Yes, there is such a thing! I am talking about it today, because an “Omphalocele” made up part of the full disorder called Pentalogy of Cantrell, that our son Mitchell has. Chances are that you … More What is an Omphalocele?
It’s been a couple of tough weeks with Mitchell’s sleep pattern all over the place. Although he has a high dose of melatonin to assist his circadian rhythms, every few months he seems to have a patch where he is unable to fall asleep and will become either hyper or aggressive. Or in this case … More Remembering happy times